As a few of you know and quite a few of you don’t about 2 years ago my now 7 year old had a tonic clonic (formerly called grand mal) seizure in his sleep. I was 8 weeks pregnant at the time and was in early pregnancy lala land, so didn’t quite click as to what was going on. So once he came to I just shuffled him off to my bed to sleep.. as any sleep deprived, nauseated, pregnancy space cadet would. The next day he vomited all day long, so in my mind I just wrote it off as a febrile thing and kept chugging along in my pregnancy bubble.
2 weeks later it happened again, only this time it was 9am and my husband was home (he was working nights at the time). He thought he was choking as when he seizes he makes this gaggy guttural sound, so we called an ambulance. When they arrived he was conscious but not really aware of his surroundings, so we went to our local hospital. The local hospital said it was febrile because he was recovering from a cold.. but I knew there was more to the story.
For the next few weeks he kept having seizures in his sleep and we were in and out of our local hospital, we were finally sent for an EEG (this is where they glue electrodes to your head to read the brain waves) and my little man was diagnosed with Epilepsy.. he was 5.
People kept telling me things like “Oh that’s great news, epilepsy is controllable with meds” and “I have friends with epilepsy and they are just fine”.. but he was 5 and the thought of forcing him to take medication broke my heart.. We don’t even like to give Panadol to our kids so actual pharmaceutical pharmaceuticals scare the crap out of me.. having worked with them for years I know the risks etc.
So we looked into natural therapies, researched every possible avenue and sourced the controversial stuff.. but even that I couldn’t bring myself to give to my untainted, puppy dog eyed 5 year, because there was no way to test the strength of the product and no way to guarantee that the next one I sourced was going to be the same strength etc (This needs far more research and testing … but that is a WHOLE other blog post 😉)